Tyler Genest, Hawaii born boy, talks about Spina Bifida and his struggles with that. Due to popular demand, if you’d like to contact Tyler directly and share your comments: Email him at: Wheelz_1986@hotmail.com or facebook him: Tyler Genest Documentary produced by: Nelson Quan – nelsdawgy@gmail.com
31. May 2010 at 5:14 pm
I think this is an awesome video. Very inspirational to me. I have spina bifida myself. So I know how it is not to be able to walk.
31. May 2010 at 6:03 pm
Hi ny name is Arlene first I want to say that your brave and amazing . I am tryint to adopt a lil guy and still in the process. He has Spina Bifida and is 4 yro . he is so happy and bubbly, I have done countless researches and talk to lots of councilers . Is there as a young man anything that would help me parent a lil guy with this disability that would make him feel better about him self
31. May 2010 at 6:21 pm
you look like david beckem
31. May 2010 at 6:57 pm
what gifts are they exactly
31. May 2010 at 7:25 pm
I had a baby with spina bifida , and he died after 5 minutes and i am crying every day and i feel very sorry about poeple who are sick….
31. May 2010 at 7:56 pm
Don’t feel sorry for us born with SB. We have insights and gifts that go far beyond what a “normal” person could ever comprehend. I wouldn’t trade who I am for anything.
31. May 2010 at 8:45 pm
i had Spina Bifida meningocele. I had surgery at a week after i was born.
31. May 2010 at 9:01 pm
Awesome! No problem at all.
And thank you.
31. May 2010 at 9:54 pm
Like I said before
evilsofdating I have removed my comment.
And Tyler u are right, it wasn’t my place to answer. My apologies.
31. May 2010 at 10:15 pm
evilsofdating just to make you happy I will remove my answer
31. May 2010 at 10:28 pm
Hello everyone!
I’m thrilled from all the feedback my story has gotten. Thank you very much and I’m so so glad it’s spoken to so many viewers in such personal ways. I’d like to let you all know that toward the end of this month I’ll be posting an updated video talking about different aspects of my life, and also telling about the awesome changes I’ve had in my life in the past couple of years including moving to a new home and my different relationship status
31. May 2010 at 10:40 pm
For this second video I’d like to open myself up to you all and address any questions anyone may have. Feel free to message me here on youtube or email me at the address listed in the info box above on the right if you have something specific you’d like me to include.
Thanks for the input everybody. I look forward to talking to you all soon!
31. May 2010 at 11:02 pm
I agree with Tyler…I am positive that you had nothing but good intentions with your response mrswheelz89, and I’m sure you are a very sweet person…but don’t you think it would have been more respectful toward Tyler if you hadn’t divulged personal information, whether it was correct or not, to an internet forum without his permission? I mean…it IS his story, after all….
31. May 2010 at 11:37 pm
I’m sorry, I don’t agree that it was your place to respond to questions like that.
1. June 2010 at 12:10 am
how does he pee and masturbate and poop?
1. June 2010 at 12:17 am
i had spina bifida, but, i was saved
1. June 2010 at 12:40 am
Hi, My name is Chris & I also have SB. I think you’re videos are great! I also have had my share of stupid questions about my condition but people who do not deal with these issues are just curious mostly others are just nosy & rude. Anyway, hang in there and thanks again for posting.
1. June 2010 at 12:50 am
i have spina bifida i feel for you
1. June 2010 at 1:32 am
im so glad i saw your video i have SB too im 18 and almost everything that you ve talked about in both videos i can relate to i would like to know more about you email me if you are interested
1. June 2010 at 2:15 am
Awesome video. I have SB as well, though I got lucky and can walk – no Hydro or anything either.
Keep up your awesome work!
1. June 2010 at 2:22 am
Hi Tyler!My son also has SB and I must say this is a great vdo.Thankyou so much for it.I shall show it to my son when he is older.And yes, I do think you’re very very handsome:)
1. June 2010 at 3:05 am
i was born in 85 they started to do procedures for spina bifida then. if i had been born a year earlier they would not be able to help me. but thank god im not in a wheelchair i was suppose to be but i am a believer. as for this fellow i wish him the best.
1. June 2010 at 3:48 am
yo soy la hija de una geobaraa y me comoviste mucho creo que eres un hombre de un buen ejemplo al tener ese tipo de discapasidad , tengo 10 años yo sisera mente tengo 10 años de edad y ahora que lo veo eres un hombre fuerte y capaz de seguir con tu vida .
1. June 2010 at 4:11 am
you r so brave.god bless you , nice to know people like u. we’re from costa rica in central america. my daughter says hi
1. June 2010 at 4:59 am
is the popping sound coming from your chair a bearing that’s bad? Just curious. I have to use a chair as well, but I don’t have SB I have another disability. I’m glad to see you living independently.